Dear Aunt Pat, Today was my 25th Birthday and the most important thing I had to do was visit Uncle Jimmy. Its not the same without you. I still cant believe your gone. You know just a few weeks ago you were at your door and you were waving to me. Every-time I go to nannies I always see you at the door with your makeup on. I always thought you ready to leave to go out someplace. I still picture you there... I always will. I know that Uncle Jimmy will be okay with all of us surrounded by him. Today he was alone and I sat with him for a good half hour and the first thing that he did was smile and he gave me the biggest hug ever. Then he said to me " I am lost without her". It broke my heart. I FEEL like I never got to say thank you for always being there for me. It's not going to be the same christmas eve I truthfully dont want that day to come. You know I was thinking of last christmas eve last night..you were sitting on the couch and you and Uncle Jimmy gave me a christmas gift like you do every year and for some reason when you handed me the bag I was confused. I think I was so overwhelmed by the noise for the first time. I thought that christmas gift was for snuggles because It a dog on the bag lol. I remember all I saw you say was " dog cute". It was so loud because there so many people here and it was my first time with my hearing aids on for the holiday. I walked away and an hour later you ask me if I opened the gift and if I liked it and I said I THOUGHT IT WAS FOR SNUGGLES! You laughed lol. I was so embarrassed. For some reason I keep thinking of this day. You and Uncle Jimmy always donated for the past 3 years for the Walk4Hearing.I remember asking you and you said Of course I'll donate, its for a good cause" and I never got to thank you one more time... I know your okay because your with Great Grandma and Great Grandpa and the list goes on. I know great grandma's happy your with her.
I love you & Miss you... and I promise we will take good care of uncle jimmy.
Friday, November 19, 2010
Sunday, November 14, 2010
Love Language Video Captioned
Hey Everyone, Im sure you all are getting ready for Thanksgiving. Time is flying like crazy. I saw this video on youtube
Check this out....
Love Language
Smile-Hugs,
Check this out....
Love Language
Smile-Hugs,
Monday, November 1, 2010
Extreme Makeover Show & other things
Last night when I got home I just needed to relax after a long horrible day.. I still cannot believe my aunt is gone so suddenly and out of the blue. Seriously live each day like its your last because anything in seconds can happen and yes that is my biggest fear lately. Anyways I watched the Extreme Makeover show about the Oregon School for the Deaf. I really enjoyed watching this show and I was so happy they put something like this on TV. I was AMAZED when a few of the people got emotional on there about " hearing loss". I was so happy that Starkey gave all these children new hearing aids. It just made my night and put a big smile on my face and I even applaud LOL! I am also happy the people that are on the show learned a few signs before they went to OREGON's school. Things like this make my day and the awesome Strobe lights to let you know someone's coming in your dorm is awesome. So a big thanks to ABC for putting this on TV.
If I ever win the lottery my dream is to donate most of the money to Starkey Hearing Foundation. I struggled my entire life as many of you know and I dont want these amazing children regardless of whatever age to STRUGGLE. I want them to Succeed in life and be happy and proud of who they are! It took me a very long time for me to get there I finally go there though. Now I realize look at all that support and the deaf community and all the technology we have today its totally different. It just amazes me.
Anyways, Tomomrow is another big day yes at 3pm though haha lol so i get to sleep most of my day because I am just beet from this funeral. Tommorow I find out the results from my hospital stay NO it has NOTHING** to do with HEARING LOSS or Cochlear Implant. Its about my brain because I havent been well for 3 years now. So I am hoping they found something. Keep those fingers crossed.
2nd- I am excited and nervous on Nov 16 a few days before my 25th bday I am going into the city to have CI DEMO. Basically this is where I meet with the audiologist who tested my R ear out and the surgeon. So nervous! I have so many questions in the notebook. I feel weird asking all these questions and I know its common but I dont want to be annoying lol. I will let you know about this day....
Here is the direct link to the ABC show Extreme Makeover. Thanks Frieda! To put captions on all you have to do is click CC. Its such a great show please watch it for those that didnt.
Extreme Makeover Oregon School for the Deaf
Have a good night!!!
Smiles-Hugs
If I ever win the lottery my dream is to donate most of the money to Starkey Hearing Foundation. I struggled my entire life as many of you know and I dont want these amazing children regardless of whatever age to STRUGGLE. I want them to Succeed in life and be happy and proud of who they are! It took me a very long time for me to get there I finally go there though. Now I realize look at all that support and the deaf community and all the technology we have today its totally different. It just amazes me.
Anyways, Tomomrow is another big day yes at 3pm though haha lol so i get to sleep most of my day because I am just beet from this funeral. Tommorow I find out the results from my hospital stay NO it has NOTHING** to do with HEARING LOSS or Cochlear Implant. Its about my brain because I havent been well for 3 years now. So I am hoping they found something. Keep those fingers crossed.
2nd- I am excited and nervous on Nov 16 a few days before my 25th bday I am going into the city to have CI DEMO. Basically this is where I meet with the audiologist who tested my R ear out and the surgeon. So nervous! I have so many questions in the notebook. I feel weird asking all these questions and I know its common but I dont want to be annoying lol. I will let you know about this day....
Here is the direct link to the ABC show Extreme Makeover. Thanks Frieda! To put captions on all you have to do is click CC. Its such a great show please watch it for those that didnt.
Extreme Makeover Oregon School for the Deaf
Have a good night!!!
Smiles-Hugs
Sunday, October 31, 2010
I am featured on another Blog
Thank you so much Joey for putting my article on your blog!
Check out Hearing Loss Profile on Joey's blog.
Happy Halloween!
Check out Hearing Loss Profile on Joey's blog.
Happy Halloween!
Thursday, October 28, 2010
What A Day...
I havent been around so much has been going on. Today I was woken up and heard some terrible news. My Aunt passed away this morning. Lately, between my health issues and now this I just dont get why life has to be so unfair you know. Its so scary because in seconds your life can change forever. Aunt Pat We Love You and miss you terribly.
Anyways- Recently, I was in the hospital for more testing for 4 days. It was very difficult to communicate with the nurses. I am sure the dr saw my frustration because I was on camera 24/7. I specifically told every nurse I AM DEAF. I cant hear even with my hearing aid. I put up a sign that saids I AM DEAF I lip read and sign etc. It was on the DOOR mom put it up for me so It was there and never taken off. Everytime someone came in there was a problem. I couldn't communicate at all. It was frustrating for me and it gets to the point were I get aggravated because its not the 1st time at this same hospital. Yes its a different department but still COMON! Get it right already. You know the dry erase board I even put another sign there. Still nothing. I seriouslly think they are in there own worlds... its sad. I dont know what else to do about it I spoke up I said I was deaf. They still talk to me through curtains. I even bought my own dry erase board with me which I didn't even use. The signs I printed out I got free from the computer did NOTHING for me ZERO. So now this time Im going to take the time to make my own its going to be on RED PAPER and big letters. First of all if you get admitted to hospital you get a book and " your rights" the very first page is states information if you are deaf or hard of hearing. For now on I am just going to request interpreters. What really pissed me off was the very last day it was during the day no one was with me yet and the nurse comes in and saids " YOUR DEAF?" I go yes I am " but you talk so well". I go I know I had alot of speech my entire life and I just recently lost all my hearing. I didn't know you were deaf how long ago did you put up this sign no one told me you were deaf? I said its been there since the moment I was admitted and its on the DOOR NEAR THE DOOR KNOB to walk in. " Oh I didn't see it". Seriously I been learning to be my own ADVOCATE and it still doesn't work. I also forgot that I was on the monitor so it was 24/7 video. Im sure my dr saw How frustrating it was for me. He knew I was deaf he communicated with me fine. So I moved on its over with hopefully I dont have to go back to the hospital for a very long time.
On the other hand, I found out Marlee Matlin my Idol who happens to be a deaf actress is going to be on Extreme Makeover on Sunday tune in if you live in NY its on ABC. Check out the video here
Hope you all have a good night!
Anyways- Recently, I was in the hospital for more testing for 4 days. It was very difficult to communicate with the nurses. I am sure the dr saw my frustration because I was on camera 24/7. I specifically told every nurse I AM DEAF. I cant hear even with my hearing aid. I put up a sign that saids I AM DEAF I lip read and sign etc. It was on the DOOR mom put it up for me so It was there and never taken off. Everytime someone came in there was a problem. I couldn't communicate at all. It was frustrating for me and it gets to the point were I get aggravated because its not the 1st time at this same hospital. Yes its a different department but still COMON! Get it right already. You know the dry erase board I even put another sign there. Still nothing. I seriouslly think they are in there own worlds... its sad. I dont know what else to do about it I spoke up I said I was deaf. They still talk to me through curtains. I even bought my own dry erase board with me which I didn't even use. The signs I printed out I got free from the computer did NOTHING for me ZERO. So now this time Im going to take the time to make my own its going to be on RED PAPER and big letters. First of all if you get admitted to hospital you get a book and " your rights" the very first page is states information if you are deaf or hard of hearing. For now on I am just going to request interpreters. What really pissed me off was the very last day it was during the day no one was with me yet and the nurse comes in and saids " YOUR DEAF?" I go yes I am " but you talk so well". I go I know I had alot of speech my entire life and I just recently lost all my hearing. I didn't know you were deaf how long ago did you put up this sign no one told me you were deaf? I said its been there since the moment I was admitted and its on the DOOR NEAR THE DOOR KNOB to walk in. " Oh I didn't see it". Seriously I been learning to be my own ADVOCATE and it still doesn't work. I also forgot that I was on the monitor so it was 24/7 video. Im sure my dr saw How frustrating it was for me. He knew I was deaf he communicated with me fine. So I moved on its over with hopefully I dont have to go back to the hospital for a very long time.
On the other hand, I found out Marlee Matlin my Idol who happens to be a deaf actress is going to be on Extreme Makeover on Sunday tune in if you live in NY its on ABC. Check out the video here
Hope you all have a good night!
Wednesday, September 29, 2010
Visit to the Audiologist Office Take 5
I went to the Audiologist office because I was explaining to her I cannot use my IPOD with the wire. She said the wire is DEAD and that she has to send it back. She knew where the problem was. This is my 5th wire. I am just very frustrated. I just wanted to listen to music. She told me being that I wont be around next week to go to Radio Shack and see if they have a similar wire. It is going to take at least one week or two to get another wire.
Smile-Hugs!
Danielle
Smile-Hugs!
Danielle
Tuesday, September 28, 2010
AI- LIVE: Classroom Captioning In Austraila
To the Parents and Students, I wanted to let you know there is LIVE CAPTIONING happening inside classrooms now in Australia. This really makes me happy to see that this is available for those that are deaf/ hard of hearing. Check out the video. It is captioned.
AI-LIVE
Also, I wanted to say Thank You all for the kind emails and amazing support about being a Candidate for a Cochlear Implant! I really appreciate each and every email. It means alot.On the other hand, A few of you asked what kind of hearing aid batteries do I use because the ones you are using aren't successful or don't last. Well to tell you the truth,I have tried over the years many different batteries and to be honest they all STINK* some wouldn't even last me a day. 8 months ago when I received my hearing aid I was told by my Audiologist to use ECO-GOLD. I never heard of the company. I thought I give it a try. They are such a great company. There are many reasons why I love ECO-GOLD heres why:
1- They ship fast plus FREE SHIPPING!
2- They are really inexpensive $24.00 tops for 42 batteries you cant beat that.
3-The best part is- If I put a brand new battery in this morning it will last me for about 3 weeks. Its amazing and I wear this hearing aid the moment I wake up to the moment I go to sleep. Its great battery life! I cant even tell you. You can order online here. I advise you to figure out what size battery you need. Also these batteries made my hearing more clearer as other batteries would make horrible sounds. Let me know how they work for you.
Have a good night!
Smiles-Hugs,
Danielle
AI-LIVE
Also, I wanted to say Thank You all for the kind emails and amazing support about being a Candidate for a Cochlear Implant! I really appreciate each and every email. It means alot.On the other hand, A few of you asked what kind of hearing aid batteries do I use because the ones you are using aren't successful or don't last. Well to tell you the truth,I have tried over the years many different batteries and to be honest they all STINK* some wouldn't even last me a day. 8 months ago when I received my hearing aid I was told by my Audiologist to use ECO-GOLD. I never heard of the company. I thought I give it a try. They are such a great company. There are many reasons why I love ECO-GOLD heres why:
1- They ship fast plus FREE SHIPPING!
2- They are really inexpensive $24.00 tops for 42 batteries you cant beat that.
3-The best part is- If I put a brand new battery in this morning it will last me for about 3 weeks. Its amazing and I wear this hearing aid the moment I wake up to the moment I go to sleep. Its great battery life! I cant even tell you. You can order online here. I advise you to figure out what size battery you need. Also these batteries made my hearing more clearer as other batteries would make horrible sounds. Let me know how they work for you.
Have a good night!
Smiles-Hugs,
Danielle
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