Tuesday, February 28, 2012

mapping #2

Today I went into the city for my second mapping. What a day!!! They wouldn't take me because of insurance issues meanwhile everything is fine. JUST A NIGHTMARE. Finally at 11:20 they took me after I said JUST BILL ME!

My audiologist put my processor (N5) onto the computer to check to see if it is working
 ( standard procedure). Then series of beeps came on and I had to raise my hand and determine how many beeps that I heard 1-5. I did pretty good. After the series of beeps she made it louder and adjusted the map so I can hear at a comfortable level. I hear so much better since the mapp since changed. The processor is louder and I can communicate well. I heard her voice fine. No more mickey mouse.

I did explain to my audiologist that I can understand Adele's song on my ipod but not Lifehouse my favorite band that I been listening to for year.She told me because with Adele you just hear her voice ,but with Lifehouse you hear other people singing and the drums etc. So that will take time of course. She also suggested me to practice. I cant use the Sound & way Beyond because its not compatible with my mac so she suggested to try books on tapes instead. I will use my Nook for that. Finally the program I am on is comfortable if I need to lower it I will. I have four programs each week I have to try each program.

I am still having trouble communicating with family and friends so it will take time. Nothing is perfect. I am happy with my mapp. I have to go back in a month.

My audiologist also ask if I want to hear more background noise when I listen to music or less background noise?  I prefer less background noise so she said she adjusted that in the map as well which is pretty neat. I didn't know that was an option.

Below this Article is a MUST READ!!!!


My Turn: Hearing-impaired people need friends and some patience

They hover between the hearing and deaf world but fear feeling like outsiders. January 09, 2012|By Terri Goldstein, Special to the Los Angeles Times

Imagine yourself in a country where nobody speaks your language. It becomes a necessity to rely on your other senses and hone your powers of observation. You welcome the times when you can "fill in the blanks" and get the gist of a conversation. Each situation is stressful: Will you be a participant or an observer?
This is the life of a hearing-impaired person.
We are not deaf, and, therefore, most of us do not read lips, sign or wear hearing devices 100% of the time. We try to preserve whatever hearing we have left. We walk softly on the fine line between the hearing and deaf communities.
Even our friends are selected carefully. We cultivate friendships based on who is sensitive to our needs. They are the people who are willing to speak a little louder and more distinctly. They are the people who are willing to repeat themselves if they see from your expression that you didn't hear all that was said. They don't wait for you to apologize or "phase out" of a difficult-to-hear conversation. They make sure that you never feel ashamed because of your disability.
Each day is a series of plans — how to seat yourself and others so that you have the best hearing advantage, where to go for business meetings and social events to avoid loud, busy places, etc. However, sometimes it is difficult to control the situation.
Envision going to the theater or movies only to find the audience laughing with delight when you have no idea why. Maybe you smile or chuckle to camouflage your discomfort, hoping that this will not recur throughout the movie. These facilities usually offer headsets, which enable you to amplify the volume. Unfortunately, many are not well maintained and cause a static-like sound. It is always a pleasure — and a surprise — when we can enjoy a movie without struggling.
We sometimes avoid talking on the phone, knowing that we may need you to repeat yourself several times. You can understand why some of us choose to communicate by email or text!
We arrive at speaker functions and seminars at least 30 minutes early, so that we can get a much needed front-row seat.
Even in the health club, we wear our hearing aids to help follow the class routines. We certainly don't want to be caught doing push-ups when the rest of the group is doing sit-ups.
In spite of our disability, many of us continue to be social and take part in group activities. There is always the fear of asking a question that has already been asked and answered. We understand that you may find it funny, but please know that it is mortifying to us.
On occasion, we may try to monopolize the conversation in order to control what is being said. Even with all the accommodations we give ourselves, all too often we mix up or miss words. We go home feeling embarrassed and wonder why we subject ourselves to group functions. 
By Terri Goldstein, Special to the Los Angeles Times

Have a great day!!

© 2012 My personal Hearing Loss blog

Friday, February 24, 2012

Early Intervention :The Missing Link

Great video.  This video is voice, captioned and signed.

© 2012 My personal Hearing Loss blog

Post Activation.... 11 days

It has been 11 days since Activation.  This week has been a stressful one because my uncle has passed. Finally Today I started to practice my hearing. My friends are telling me I talk " too low" and I am "mumbling." I cant hear myself talk so that is probably why. The mapp is definitely way to low for me. This process is different this time around... It is not the same. I have to learn how to hear all over again. The last few days I have been frustrated because I am not grasping what is being said. I hear better with my good ear the unaided left ear and that is messing everything up for me.

Yesterday I went for a walk because it was 60 degrees. I listened to music by using the audio cable. The audio cable goes directly into my processor and the other end goes into my ipod. I was able to understand Adele's song but I wasn't able to understand The Fray or Staind which are songs I have heard before. Adele's song is fairly new on my ipod. So I am a bit confused why I couldn't understand their songs. The sound was mumbly.  I feel like I am missing out a lot. I have only been activated for 11 days. I know I have to be patience and have a long way to go.

I want to use the Sound & Way beyond to practice but I cant because its not MAC compatible.  :( So I printed out phonetic words to practice.  Someone in the house will repeat the words back to me.

On Tuesday Feb 28th I am going back into the city for a mapping.

© 2012 My personal Hearing Loss blog

Wednesday, February 22, 2012

A Letter for my God Father....

On Saturday February 18th, 2012 you went to heaven. I still cant believe this happened especially on the 18th, because thats the same date as my birthday even though its a different month. You are an amazing God father and I will never forget you. You always made me laugh. You will always be in my heart and I will cherish every moment we spent together. The last few days have been the hardest for me. I remember you used to bake amazing pies for me apple and pumpkin. You always loved to cook and bake. I remember you liked watching Martha Stewart. Always had cook books out.  I enjoyed watching baseball with you either the yankee or the met games. You have taught me a lot about baseball. I also remember the time we spoke about me going to Ireland. I will definitely be going there for you. Every time I close my eyes I see you on the porch holding your newspaper. Remember before I got sick I always took a walk to your house and we used to just sit on your porch and chat. I can still see you waving to me as Im coming down your block. I will always cherish those moments with you. This is NOT going to be the same without you here. I hope your okay. I am terribly sorry I didn't get to come up to the hospital to see you because of your infection. I hope you forgive me.

I will love you always I promise. By the way I heard that you loved the Irish flowers I got you :) I am going to try to find them so I can plant them in my yard for you.

I love you.....

An Irish Blessing
May the road rise to meet you, 
May the wind be always at your back, 

May the sun shine warm upon your face, 
May the rains fall soft upon your fields, 
And, until we meet again, 
May God hold you in the hollow of His hand.

© 2012 My personal Hearing Loss blog

Monday, February 13, 2012

Re- Implantation Activation...

Today I went into the city for Activation. First I saw my surgeon, he removed a stich that was sticking out. Then I went in for Activation. I was very overwhelmed. My audiologist tested my implant before it was going to be turned on. When I was switched on It was really low. I had to raise my hand when I heard a beep. She then made it louder and I started to hear noises but this time it was different. :( I hear mickey mouse sounds. More like a puppet. This is so hard to explain because I never experienced anything like this with my first implant. I started getting nervous but I knew that this implant is totally different. My audiologist said a few words back to me and I heard most of them. I am just freaking out over the different voice. I cant really hear much. I feel like Im straining to hear.

When I got home I was exhausted that I just passed out for an hour. Then I practiced my hearing. I am having trouble understanding words and basically everything. The program is on really low. While I was practicing I used my remote to change the processor to program 2. This seemed a little louder but this still seems to low for me. I have to stay on each program for a few days each.

Here are some of the words I am having trouble with.
Cup     Run
Shoe    Van
Pea      Bail
Fill     Very
Feel    bent
Mat     Po
Bat     Bug
Rat     Ten

I can barely hear, I am stressing out. I have a lot of practicing to do. Like I said I feel like Im straining and I'm lipreading more. Yes, I know I have to be patient. This just seems so different than the first time around. It is only day one. I will not be using my hearing aid anymore in my Left ear. Now I have to learn to hear all over again with the implant. Back to the beginning.

Here is a short video. I tried to caption it the best I can...

I will be back during the week.  I have to go to bed im exhausted.

© 2012 My personal Hearing Loss blog

Sunday, February 12, 2012

Activation is in one day...

I'm back! The last couple of weeks after surgery was really rough. I am still dizzy, but I am much better. I have my days. Anyways the great news is ACTIVATION is finally here tomorrow. I am pretty nervous this time around. I have to bring both of the processors which includes the backup, cables, remote and batteries and a few other things my audiologist needs. I hope I dont have to start all over again to hear. Maybe I will be able to pick up from where I left off three months ago. I am leaving by 730am Monday morning. I have to see my surgeon first at 930am then 10am is activation which is two hours long! This is going to be a long day.

I am excited to hear again. I feel like I have missed so much in the last few months that brought me back into that isolation stage. It was the worst... but thankfully I had a hearing aid for my left ear.

By the way the tinnitus ( ringing in the ears) is GONE thank god. Thanks to Dr A. for giving me XANEX for it. It works.

Hope all is well. I will be back possibly Monday night.

© 2012 My personal Hearing Loss blog